Today happened to be picture day at school. Normally, an elementary student would be excited about getting ready for the big picture day at school. Wearing new clothes, applying lip gloss, picking out earrings, doing their HAIR, but Queen Alopecia was stuggling this morning. Today would be the first school picture with no hair. Yes, she has a wig, but she absolutely hates wearing it. She said that she doesn't feel like herself; like she is trying to be someone else, and it's not that comfortable. I think she looks adorable wearing her wig, but she is the one that has to deal with this situation.....this autoimmune disease. If she doesn't want to wear her wig, I'm not going to make her.
She said this morning, "Mom, I'm just not going to look the same.......I'm never going to be like I was!" My heart broke for her. Ofcourse, I try my best to comfort her. She is beautiful with or without hair, but she is now beginning to recognize the snickers, the laughter, the staring, the pointing......
It makes her smile when her father and I say "You are beautiful", but she longs to hear it from someone else other than her family. We speak the truth, family or not, but she needs and wants more.
She wore her new pink dress (Is there really any other color??), her hoop earrings, her lip gloss..... We painted her nails pink and then it was time to pick out some type of headcovering. She has worn all of them here and there and today it was like trying to create a new hair style. I could see the frustration on her face..... The headcovings she had were not working with her dress. Little did she know that I bought her a few new Buffs for Christmas and it was time for an early Christmas present. You should have seen her face when I reveled her new Buff from KitShack - this website has the best Junior Buff collection that I have seen online up to this date. I showed her the Butterfly Buff that matched her dress perfectly and Queen Alopecia's smile was priceless. She looked into the mirror and had such a big smile on her face. I think inside she knows that what I say is true - she is beautiful inside and out.....and that I'm not just saying that because I'm her mother.
Hope to post the school picture soon. Until then.....here is Queen Alopecia displaying some of her buffs!!